Mrs Negative

Mrs Negative embraces her tardy Positive. Life after IVF and loving the son I never thought I'd have.

Friday, June 08, 2007

Beating More Odds.

It's sort of hard to type when you're eyes are starring off into space...vacant & stunned.
My doctor just called to personally deliver the results of our Nuchal's not what I wanted to hear, it's not what I ever imagined I'd hear. High Risk. High Risk. High Risk. High Risk. High Risk.
I do not want to deal with this. I'm supposed to be safe here in the second trimester. I SAW my baby move & swallow, I heard it's perfect heartbeat. Why did I think things were OK?
I've already jumped to conclusions. Then scolded myself. I've already imagined losing my child, just for a second & I had to pull myself together because the pain in my heart took my breath away.
I see my doctor next Friday. A whole week away. Then we have an amnio, then we wait 10 days for the results. Oh God, I don't know how I am going to stay sane.
I really don't want to do this. Did anyone else have a high risk result? Can anyone help me keep it together? Hef. Don't you even think about it.


Blogger Sitting in Silence said...

So thinking of you...
I have sent you an e-mail. Just wanted to add that you can now get the piliminary (sp) readings back from an ammnio in 24- 48 hours. Then the final readings back in 10 -12 days.
I also went to a high risk clinic for a 65 minute scan with a proffessor that specialized in ultrasound. It was offered in a clinic in Brisbane that also offered ammnio's but as second choice to the scan. Even though I was placed at a 1 in 22 chance of high risk, the professor was wonderful and said she could see nothing wrong with my son and nothing to indicate such a high risk. She then left DH and I to decided on the ammnio which we went ahead with. Ring your top hospitals and ask them if this kind of scan in available to you as well.
The place I saw was called Brisabane Ultrasound for woman, the whole clinic is for high risk only.
They might even be able to recommend such a place where you live.
Dan x

Anonymous Nina said...

FUCK! I'm so sorry Mony. I ahev no experience or ideas, I'm just terrified with you. I'm also hoping for the best for you and Hef.

Blogger Valerie said...

I am thinking of you and hoping everything works out. Call your doctor and see if you can get in sooner.A week seems awfully long.

Blogger LabiaLady said...

ah man, when is the goddamn universe gonna give you a break... Mony, I'm sorry you've got this drama in front of you... peace... i wish you peace of mind soon.

Anonymous Anonymous said...

Did they tell you what makes you high risk? Any specifics? I know a friend that went through all of this, and the only thing I know she wanted, was to be able to get to appt's as fast as possible. Your in my thoughts

Blogger serenity said...

No experience with this Mony, but I want you to know I'm sending you and your baby good thoughts. May this be a scare and nothing more.


Blogger Mony said...

Jen-it's something in my blood results. The scan itself appeared good & the NT measured 2.0mm (which seems within range according to Dr google) You can see the pictures from my last post, Hef looks great.
I realise everything may all be quite fine...but it's so scary right now

Anonymous Carla said...

Oh no, Mony. I was so hoping for a carefree pregnancy for you. I will be praying hard for you and Hef. Hang in there.

Blogger topcat said...

Oh Mony my heart goes out to you, I will be praying for you and Hef every day. A few days ago I was talking with my sister about pregnancy, she said "Whatever happens, don't get that fucking NT test done." Both she and our SIL got "high risk" results back, and both gave birth to beautiful, perfectly healthy babies.
Try to stay calm sweetheart. Use some of your added positive. xoxoxoxox

Blogger Hopeful Mother said...

Hoping and praying for you that everything is fine with Hef, and that you can get out of this nightmare soon.

Blogger Dramalish said...

I hate that you've been scared by that dumb test. If I ever get pregnant again, I don't think I will have it. studies show that the occurance of false positives are SO HIGH.
Keep thinking about those strong, clear u/s, and focus on all the concrete signs that say Hef is fine.

Hugs till you get some reassurance... and then some more hugs.

Blogger PCOSMama said...

Oh Mony, I am so sorry! I can't even imagine how scared and worried you are! Please try to take heart in what Dramalish said - it really is quite common for the blood test to come back false positive. Actually my sister and one of my close friends both had positive blood tests, but both of their children turned out just fine. Hopefully this will be the case for you too! I also agree that there has to be some way for them to get you in sooner for the amnio - explain your fear, they should be more understanding, especially after all you've been through!

Good luck sweetie... we'll all be thinking of you and praying everything is alright.

Blogger PCOSMama said...

Here's a site you might find helpful...

Though most sites I saw listed a 5% false positive rate, this site states that it is actually much higher, maybe even as high as 80% of babies that test positive will actually be unaffected, meaning they will not have any of the birth defects.

Hope this helps reassure you a little....

Anonymous alice said...

yes, i was told here in canada that the first trimester screening (transnuchal fold u/s and blood test) can result in a high risk diagnosis which will require an amnio for concrete results. but of those who get that high risk tag, 80% go on to get back good amnio results. so only 20% of the people told they are high risk are actually at risk. my fingers are crossed that you are one of the 80%. can you call your doctor back and ask to go in for an amnio sooner to speed this whole hellish experience up? why wait all that time unless you have already decided you don't want an amnio and you will just wait out the pregnancy hoping for a happy ending (which you are likely to get).

Anonymous alice said...

sorry - comment number two! I personally know two people given the high risk tag who had amnio and there was absolutely NOTHING wrong with their babies.

Blogger Von said...

Oh Mony, I'm so sorry to hear that. I can only imagine what hell you must be going through.
I will hope and pray for you that all is ok. My gut feeling is that it will be.
Take care and try to stay positive.

Blogger Sarah said...

oh no, i'm so sorry. i can only imagine how terrifying it must be. but i'm sure you've also heard/read all about the false positive rate with the NT scan. a week does seem like a long time to wait for more information. i hope you find some relief fromt his soon.

Anonymous SusanG said...

Hang in there. I have also readthat the blood tests can result in a high amount of false positives. With the amnio you will know for sure, but you just have to wait those awful long days to find out.

Thinking of you and hoping for great results!

Blogger Thalia said...

Mony this must be a terrible shock. I have heard the same as others here, this does not mean things are actually wrong, particularly if you had no morphological issues. Did they combine the morphology with the blood tests, or is it the tests alone which are giving the high rating? Because the blood results can be higher in IVF pregnancies anyway.

I think it's Aurelia who has chapter and verse on how many false positives get diagnosed, you might ask her (no matter how small).

Hang in there, I'm hoping very hard that Hef is ok.

Anonymous Anonymous said...

I have no experience with NT testing, but as a long time lurker who's been quietly cheering you on, I just wanted send good thoughts your way.

It sounds like you're getting a lot of reassurance here that false positives happen all the time. I'm praying that's what's going on with you and that after the amnio you can go back to enjoying sweet Hef.

Hang in there.

Blogger Heather said...

I have no experience with any of this, but I wanted you to know I am thinking about you.

Blogger SaraS-P said...

Oh no. I am so sorry, I hope you get some reassurance next week. I know the time until then will be torture.

Blogger Robin said...

I'm not going to tell you not to freak out cause you will anyway, but just breathe and wait for the results of a teat that is conclusive. I am praying for you and your sweet, sweet baby!!!

Blogger OHN said...

Add my name to the list of high riskers that went on to have an 8 pound wonderfully healthy bouncing baby boy. Sometimes testing causes more stress than it relieves!!! I am feeling as though all is fine with Hef and with you and this is just ANOTHER time where you will look back and say--glad that is over--while you are cuddling your little one!!

Anonymous Anonymous said...

Another good resource is and look up nuchal translucency. It appears that there are many false positives and it also depends on the statistics...have a chance of 1 and 25 or 1 and 4000. There are so false negitive readings too. Good luck, just think postitivly and many out here will be doing the same for you. Good luck from a long time lurker.


Blogger Pixxiee said...

Hang in there...I've heard lots of stories too about High Risk turning into a completely healthy gorgeous baby who is just waiting for his Mum to welcome him to the world. You've been through so much hon, that it doesn't seem fair you have this worry hanging over your head. Stay cool, and remember, if the doctors knew EVERYTHING you would have been pregnant years ago.


Blogger Cibele said...

dear mony, my heart goes out to you. You , P and Hef will be on my prayers


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